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Working Group: News and Links Research Archives
(Updated 03/11/2002)




Some of the articles below are available through The Lancet, The New York Times, and Medscape. These sites are free, but do require registration.

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Research Articles and Research News Archives
MARCH/APRIL
MEDLINE Abstracts End of Life Care 1999 (Medscape, 1999)

Patients' Knowledge of Options at the End of Life (Medscape -- JAMA, 2000)

MEDLINE Abstracts: Palliative Caregiver Needs 2000-2001 (Medscape, 2000-2001)

Advance Directives Found Key to Reducing Stress for Families of Hospitalized Patients at the End of Life (NINR Press Release, March, 2001)

What Do We Tell the Children?: Understanding Childhood Grief (Western Journal of Medicine, March, 2001)

Preferences for Surrogate Decision Makers, Informal Communication, and Advance Directives Among Community-Dwelling Elders Results From a National Study (The Gerontologist, April, 2001)

Community Cancer Programs and Hospice Services (Oncology Issues, March/April, 2001)

Building Ties Between Cancer Centers and Hospices (Oncology Issues, March/April, 2001)

Building Ties Between Cancer Centers and Hospices (Oncology Issues, March/April, 2001)

Community Cancer Programs and Hospice Services (Oncology Issues, March/April, 2001)

Human Immunodeficiency Virus Infection in Elderly Patients (Southern Medical Journal, April, 2001)

Understanding the Experinece of Pain in Terminally Ill Patients (Lancet, April 28, 2001)

Window of Opportunity for Pain Control in the Terminally Ill (Lancet, April 28, 2001)

New Rule Will Change the Psychologist-Physician Relationship (APA Monitor, April, 2001)


MAY/JUNE

Chemotherapy May Be Overused at the End of Life (British Medical Journal, May 26, 2001)

The Dying Process: Patients' Experiences of Palliative Care (Lancet, May 26, 2001)

Race and Restless Sleep Complaint in Older Chronic Dialysis Patients and Nondialysis Community Controls (The Journal of Gerontology: Psychological Sciences and Social Sciences, June, 2001)

Long-Term Care and a Good Quality of Life: Bringing Them Closer Together (The Gerontologist, June, 2001)


JULY

EDITORIAL: Behavioral Health Matters The Next 10 Years in Behavioral Health Service Delivery (Drug Benefit Trends, July, 2001)

The Value of Providing Quality-of-Life Information to Managed Care Decision Makers (Medscape, July, 2001)

Personality Characteristics of Physicians and End-of-Life Decisions in Russia Medscape General Medicine (Medscape, July 12, 2001)


AUGUST

Enhancing Caregiver Outcomes in Palliative Care (Cancer Control: Journal of the Moffitt Cancer Center, July/August, 2001)

Assisted Suicide: A Few Answers - Many Questions (The Gerontologist, August, 2001)

A Comparison of Characteristics of Kevorkian Euthanasia Cases and Physician-Assisted Suicides in Oregon (The Gerontologist, August, 2001)

Care-as-Service, Care-as-Relating, Care-as-Comfort: Understanding Nursing Home Residents' Definitions of Quality (The Gerontologist, August, 2001)

Psychological Adjustment to Sudden and Anticipated Spousal Loss Among Older Widowed Persons (The Journal of Gerontology: Psychological Sciences and Social Sciences, August, 2001)

Spirituality and Medicine: A Proposal (JMCC, August, 2001)

Can the Patient Decide? Evaluating Patient Capacity in Practice (AAFP, August, 2001)

Trends in Causes of Death Among the Elderly (Aging Trends, August, 2001)

Diagnosing Disparities in Health Insurance for Women: A Prescription for Change (The Commonwealth Fund, August, 2001)

Patients Desire Euthanasia as a Means of Limiting Loss of Self (The Lancet, August 02, 2001)
Summary: Reuters Health (Medscape)
Review: Desire for Physician-Assisted Suicide: Requests for a Better Death? (The Lancet)

Origins of the Desire for Euthanasia and Assisted Suicide in People with HIV-1 or AIDS: A Qualitative Study (The Lancet, August 4, 2001)

ACP-ASIM Nix Legalization of Physician-Assisted Suicide (Reuters Health, August 06, 2001)

Dr. Christina Puchalski on "Integrating Spiritual Care into Medical Care at the End of Life", by Louise Levathes (The Washington Post, August 06, 2001)

Coping Skills Intervention Worthwhile for Parents With AIDS and Their Children (Reuters Health, August 07, 2001)

State High-Risk Insurance Pools of Limited Help to Medically Uninsurable: Access and Affordability Problems Highlight Shortcomings of Individual Health Insurance Market (The Commonwealth Fund, August 10, 2001)

Letter Series: New Beginning for Care for Elderly People (British Medical Journal, August 11, 2001)

EDITORIAL: Maintaining Older People's Dignity and Autonomy in Healthcare Settings (British Medical Journal, August 11, 2001)

Loss of Religious Faith May Increase Risk of Death (Reuters Health, August 13, 2001)

"When a 'Good Death' Isn't for Everyone," by Benedict Carey (Los Angeles Times, August 20, 2001)

"Last Days Needn't Be Spent in Agony," by Linda Marsa (Los Angeles Times, August 20, 2001)

"Putting Your Wishes in Writing," by Denise Hamilton (Los Angeles Times, August 20, 2001)

"Making a Final Request: Dying at Home Doesn't Just Happen," by Shari Roan (Los Angeles Times, August 20, 2001)

Editorials: The Challenge of Looking After People with Dementia (British Medical Journal, August 25, 2001)

Burden of Mental Illness Is Greater Among US Minorities (APA Convention, San Francisco, August 27, 2001)

Fear of Confidentiality Breach May Deter HIV-Infected Patients From Treatment (Reuters Health, August 27, 2001)

Ask the Experts on: Spinal Paralysis in Advanced AIDS (Medscape, August 30, 2001)

Drug-Resistant HIV Reaching Epidemic Proportions (Reuters Health, August 31, 2001)

"Pain" by Cindy Seiwert Information on pain and pain-related links (HMS Beagle, August 31, 2001)

European Journal of Palliative Care (Aug. 2001)
Spiritual care on the rocks?
Malignant bowel obstruction
Modified-release opioids
A focus on hereditary diseases
Can medical paternalism ever be justified?
The myth of mercy killing
Between the living and the dead
Providing scope for creative growth in palliative care
The changing face of the day hospice



SEPTEMBER

Expanding Prescription Drug Coverage in Medicare: Issues for End-of-Life Care (Last Acts Finance Committee, Sept. 01, 2001)

Factors Affecting Quality of Life in Patients with HIV Infection (The AIDS Reader, Sept. 2001)

Journal of the Royal Society of Medicine: Special Issue on Palliative Care (JRSM, Sept. 2001)

Many HIV-Infected Patients Receive Mental Health Care From Medical Providers (Reuters Health, Sept. 03, 2001)

Unlikely Guide to End-of-Life Decisions, Computer Eases Way, by John A. Cutter (New York Times, Sept. 04, 2001)

Study Links HIV With Mental Health & Substance Abuse Disorders (Mental Health Weekly, Sept. 10, 2001)

AIDS Is Leading Cause of Death in South Africa (Reuters, Sept. 17, 2001)

Washington Post Hosts Chat on Grief & the Workplace (Washington Post, Sept. 19, 2001)

Age-adjusted Death Rates: Trend Data Based on the Year 2000 Standard Population (National Center for Health Statistics, National Vital Statistics Reports, Sept. 21, 2001)

Deaths: Final Data for 1999 (CDC Center for Health Statistics, National Vital Statistics Reports, Sept. 25, 2001)

Novel Approach to End-of-Life Care Considers Whole Community's Values (Reuters Health, Sept. 25, 2001)

AIDS Increases the Risk of Non-AIDS-Related Cancers (Reuters Health, Sept. 26, 2001)

Majority of AHRQ Clinical Practice Guidelines Outdated (Reuters Health on JAMA, Sept. 26, 2001)


OCTOBER

European Journal of Palliative Care (Oct. 2001)
The art of caring
The use of NSAIDs in patients with cancer: just how safe is it?
Controlling malignant ascites
The DOLOPLUS® 2 scale – evaluating pain in the elderly
Palliative care in the Kingdom of Saudi Arabia
A review of the volunteer movement in EAPC countries
An innovative, practical course in the medical humanities
Now and at the hour of our death: the Ars moriendi and modern dying


Palliative Care in African-American Communities (Innovations in End-of-Life Care, Sept./Oct. 2001)

World Health Organization: "Cancer Pain in Children" (Oct. 2001)

Working Toward Consensus: Providers' Strategies to Shift Patients from Curative to Palliative Treatment Choices (Medscape Nursing Research Summaries, Oct. 2001)

"Debating Patients' Capacity to Decide" by Laurie Tarkan (New York Times, Oct. 2, 2001)

"World Health Report 2001: Mental Health: New Understanding, New Hope" (World Health Organization, October 2001)

General Practitioners Are a Critical Link in HIV Drug Compliance (Reuters Health, Oct. 5, 2001)

"Belgian euthanasia proposal meets resistance" by Wim Weber (The Lancet, Oct. 6, 2001)

Promoting Pain Relief and Preventing Abuse of Pain Medications: A Critical Balancing Act (National Press Club, Oct. 23, 2001)


NOVEMBER

Caregiving and Post-caregiving Experiences of Midlife and Older Gay Men and Lesbians Dissertation by Kristina Hash, Ph.D. (Nov. 2001)

AAMFT Clinical Update: "Bereavement and Loss" by Margo F. Weiss, Ph.D. (Nov. 2001)

Psychological Aspects of Living with HIV Disease (West J Med, Nov. 2001)

Study calls for more and better hospital palliative care by Andis Robeznieks (AMed News staff, Nov. 3, 2001)
See also: Palliative care: Mainstream model by Vida Foubister (AMed News staff, Feb. 26, 2001)
See also: Movement toward collaboration in clinical palliative care by Damon Adams (AMed News staff, Aug. 20, 2001)

Debate: "Why active euthanasia and physician assisted suicide should be legalised," by Len Doyal and Lesley Doyal (British Medical Journal, Nov. 10, 2001)

UK Academics Argue in Favor of Euthanasia (British Medical Journal, Nov. 10, 2001)

HHS Office of Minority Health: ABC Rado Networks to Lauch Education Campaign to Close African-American Health Gap (HHS, Nov. 11, 2001)

The loss of a loved one, 'the right kind of goodbye' by Kathleen Fackelmann (USA Today, Nov. 12, 2001)

Participation of patients in decisions about treatment for cancer by Lesley Fallowfield (British Medical Journal, Nov. 17, 2001)

"Should elderly patients be told they have cancer? Questionnaire survey of older people," by A. Ajaj, M. P. Singh, and A. J. J. Abdulla (British Medical Journal, Nov. 17, 2001)

Some Australian Doctors Hasten End for Dying (Reuters Health, Nov. 19, 2001)

Medical Journal of Australia: Focus on Medical End-of-Life Care (Click on the Nov. 19, 2001 issue)
The changing face of dying in Australia
The intention to hasten death: a survey of attitudes and practices of surgeons in Australia
Commentary: Intention, the law, and clinical decision-making in terminal care
Commentary: On causing death
The emotional impact on physicians of hastening the death of a patient
Commentary: Doctors, medicine and the care of the dying patient
Commentary: When our patients die

Innovations in End-of-Life Care Journal special issue: "Coping with Loss" (Nov-Dec., 2001)

Survey Shows That Patient Health Can Benefit When Family Caregivers Self-Identify (National Family Caregivers Association, Nov. 2001) Click on "News and Information" link

JAGS Report Suggests: Hospice Care for Nursing Home Patients May Not Be Warranted (Reuters Health, Nov. 26, 2001)


DECEMBER

"Parental Bereavement: Heterogeneous Impacts of AIDS in Thailand" by Kenneth Wachter, John Knodel, and Mark VanLandingham (PSC Research Report 01-493, Dec., 2001)

"The Toughest Topic: Family discussions about death-and who gets what in the estate-are difficult, but necessary" by Susan Brink (Dec. 10, 2001)

Resuscitation Directives Often Not Established Within 24 Hours of ICU Admission (Reuters Health, Dec. 10, 2001)

Group Psychosocial Support Does Not Seem to Improve Breast Cancer Survival (Reuters Health, Dec. 12, 2001)

Psychiatric Issues in the Management of Patients With HIV Infection (JAMA, Dec. 12, 2001)

The Inner Life of Physicians and Care of the Seriously Ill (JAMA, Dec. 19, 2001)

Negotiating Cross-Cultural Issues at the End of Life "You Got to Go Where He Lives" (JAMA, Dec. 19, 2001)

Psychological Effects of Caregiving Persist (Reuters Health, Dec. 21, 2001)

"Negotiating Cross-Cultural Issues at the End of Life" by Marjorie Kagawa-Singer and Leslie J. Blackhall (JAMA, Dec. 23, 2001)




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