End of Life Working Group

Home Page    Research    Service    Education    Policy    Bios
  


Working Group: News and Links (Current)
(Updated 03/13/02)

End-of-life issues have been receiving an increasing amount of attention over the past few years. It seems as if each day brings some new research study, newspaper article, or policy development related to how people die in the United States. Although only a fraction of this material focuses on psychosocial issues, attempting to keep up with the new developments can be overwhelming.

In an attempt to make it easier for interested parties to access new information we have developed this page and will update it regularly. If you find something important on the Internet related to research, education, practice, or policy associated with psychosocial issues near the end of life, please let us know so that we can create a link.



Some of the articles below are available through The Lancet, The New York Times, and Medscape. These sites are free, but do require registration.

MEDSCAPE

NEW YORK TIMES

THE LANCET

Some files require Adobe Reader to view them. Adobe Reader can be downloaded for free by clicking on the "Adobe" logo below.

Adobe


Research Articles and Research News
(
Archives)
JANUARY

"Suicide pact rekindles debate" by Philip Delves Broughton (JAMA, Jan. 15, 2002)

"Losing Fear. Recent Events Led Many to Consider Their Mortality, Some for the First Time. But Does Such Fleeting Reflection Really Do Any Good?" by Beth Baker (Washington Post, Jan. 15, 2002)

Deaths from painkillers are on the rise in Florida: Officials say tracking prescriptions for drugs such as OxyContin may lead to fewer overdoses.by Andis Robeznieks(AMNews, Jan. 21, 2002)

OxyContin dilemma: Allowing pain control while stopping abuse: A popular painkiller's misuse leads to headaches between law enforcement and medical communities. by Andis Robeznieks(AMNews, Jan. 28, 2002)


FEBRUARY

European Journal of Palliative Care (Feb. 2002)
Keeping the balance
Tumour-induced hypercalcaemia
Insomnia and sleep disturbances
Malignant brain tumours and palliative care
A multidisciplinary approach to terminal care
Suffering and the end of life
The use of an occupational therapy programme within a palliative care setting
Teaching through artwork in terminal care


"Israel suggests limits on right to die" by Rachelle H.B. Fishman (.pdf of article) (Lancet, Feb. 2, 2002)

AIDS Epidemic Is Ignored in Russia, Official Claims (Reuters Health, Feb. 11, 2002)

Good Physician-Patient Relationship Promotes Antiretroviral Adherence (Reuters Health, Feb. 11, 2002)

National Black HIV/AIDS Awareness Day Highlights Disparities in Treatment (Medscape, Feb. 11, 2002)

US Agents Raid Medical Marijuana Club (Reuters Health, Feb. 13, 2002)

Discussing Religious and Spiritual Issues at the End of Life: A Practical Guide for Physicians (JAMA, Feb. 13, 2002)

Annan Focuses US Congress on AIDS Crisis (Reuters Health, Feb. 13, 2002)

"Various pathways lead to a 'good death'" by Robert Z. Nemeth (The Worcester Telegram and Gazette, Feb. 17, 2002)

100-year-old patients need custom care: Doctors debate what should -- and should not -- be done to improve quality of life by Victoria Stagg Elliot(AMA News, Feb. 18, 2002)

"Secondary and Tertiary Palliative Care in US Hospitals" by Charles F. von Gunten (JAMA, Feb. 20, 2002)

"Caring for Bereaved Patients: All the Doctors Just Suddenly Go" by Amy J. Markowitz, JD & Michael W. Rabow, MD (JAMA, Feb. 20, 2002, Vol. 287, p. 882; ABSTRACT UNAVAILABLE)


Policy News
(
Archives)
JANUARY

"Mental health parity expansion falls from spending bill Efforts to broaden the parity law were dropped, but safety net programs received generous funding" by Amy Snow Landa (AMNews staff, Jan. 07, 2002)


FEBRUARY

HHS Awards $128 Million in grants to Help Family Caregivers (Feb. 7, 2002)


Conference Announcements and Summaries
(
Archives)
FEBRUARY 2002

Attending to Psychosocial Issues Near the End of Life: A SPSSI-Sponsored International Conference (Feb. 2-3, 2002)

AAHPM 14th Annual Assembly Enhancing Cultural Diversity : Bridging Barriers to Care (Jan. 31 - Feb. 3, 2002)

Center to Advance Palliative Care (CAPC) first training session: "Planning a Hospital-Based Palliative Care Program" (Feb. 21-23, 2002, Tampa, FL). For more information, call (212) 241-9090 or email Barbara Mastroddi

The Changing Dynamics of Caregiving in African-American Populations" (Feb. 28, 2002). Last Acts Partner Networking Call (Available soon in Last Acts Conference Call Archives


MARCH 2002

Last Acts Partners National Family Caregivers Association and National Alliance for Caregiving Sponsoring Train-the-Trainer Workshop for Family Caregivers (March 9-10, 2002, Register by Oct. 31). For more information, call (508) 854-0431 or email John Paul Marosy, project director

The Families and Health Research Conference (March 20-22, 2002)

National Hospice & Palliative Care Organization "Palliative Care: Collaborative Practice and All That Jazz" (March 20 - 23, 2002)


APRIL 2002

North Central Indiana's Ethics Consortium 3rd Annual Conference "New Directions in Palliative Care" (April 5 - 6, 2002)

26th Annual ADEC Conference: The Changing Face of Death, Dying and Bereavement in the 21st Century (April 10 - 14, 2002)

Harvard Medical School Presents Program on Palliative Care Education & Practice (April 23-30 & November 12-19, 2002)

HFA's 9th Annual National Bereavement Teleconference “Living with Grief: Loss in Later Life” Moderated by Cokie Roberts of ABC News (April 24, 2002, 1:30pm-4:00pm EDT )


MAY 2002-OCTOBER 2002

Changing the Lives of Older Couples: Exploring Bereavement Amount Older Adults (June 3-7, 2002, Ann Arbor, MI)

Third International Conference on Family Care National Alliance for Caregiving (October 12-14, 2002, Washington DC)


Background and Research Summaries on End-of-Life Issues

APA Working Group on Assisted Suicide and End-of-Life Decisions

Select Key Research References on End-of-Life Issues, compiled by James L. Werth, Jr., Ph.D.

Select References on Assessment, Counseling, and Interdisciplinary Teamwork in End-of-Life Situations, compiled by James L. Werth, Jr., Ph.D.

Improving Palliative Care (Edited volume, NAP 2001)

Medscape Compilation of Nursing (MEDLINE) Abstracts on End-of-Life Care

Oregon Death with Dignity Act and Annual Reports

The Use of Opioids for the Treatment of Chronic Pain (American Academy of Pain Management)

Innovations in End-of-Life Care: Practical Strategies and International Perspectives, Volume 2, 2001 (A Last Acts Initiative)

Improving Palliative Care for Cancer (K. M. Foley & H. Gelband, Eds.)

Life and Death on Your Own Terms (Lofty L. Basta)

World Health Organization Report Series on Cancer Pain

BMJ Book Review: Encyclopedia of Dealth and Dying

Doctor-Assisted Suicide -- A Guide to Web Sites and the Literature

Practice Guidelines, Resources, and Professional Issues
The Heaviness of End-of-Life Issues (APA Monitor)

An exchange on end-of-life issues in the Div 12, Section VII (Spring 2001 newsletter)

Your Life, Your Choices Workbook

The National Council on Aging Search Engine for Benefit Eligibility of Older Americans

Measuring Quality of Life: Is There Such a Thing as a Life Not Worth Living? (British Medical Journal, June 16, 2001)

A Lesson Before Dying: Med Schools Tackle End-of-Life Issues (US News and World Report, June 25, 2001)

Publications of the American College of Physicians - American Society of Internal Medicine

Multicultural Palliative Care Guidelines

American College of Surgeons' Principles Guiding Care at the End of Life

Center to Improve Care of the Dying's "Toolkit of Instruments to Measure End of Life Care"

NIH: Symptoms in Terminal Illness: A Research Workshop

NIH Technology Assessment Conference Statement: Integration of Behavioral and Relaxation Approaches into the Treatment of Chronic Pain and Insomnia

Principles for Care of Patients at the End of Life: An Emerging Consensus Among the Specialties of Medicine

EPEC - Education for Physicians on End-of-Life Care

American Geriatrics Society Position Statement: The Care of Dying Patients

APA Public Interest Office Activities and Resources on End-of-Life Issues and Care

American Bar Association Summary on End-of-Life Legislation

History and Development of the Doctrine of Informed Consent (Journal in Health Education, Promotion, Behavior, and Assessment)

Kokua Mau Hawaii's Coalition to Improve End-of-Life Care (Hawaii Executive Office on Aging)

National Health Law Program Updated Medicaid Guide

End of Life Physician Education Resource Center

Hospice Foundation of America Offers Grief & Bereavement Materials

Tips Brochures on Loss & Grieving Available from Last Acts

Compendium of Health Care Organization Guidelines and Position Statements from Last Acts (Released: Aug 22, 2001)

Grave Words: Notifying Survivors About Unexpected Deaths (Medscape)

"Completing a Life" CD-ROM

ACP-ASIM End-of-Life Care Patient Education Project

Dying Well, Defining Wellness Through the End of Life, Dr. Ira Byock

A Bioethics Primer: The Growth of a Complex Field by Andis Robeznieks (AMed News staff, Nov. 26, 2001)

Innovations in End-of-Life Care Coping With Loss (On-Line Journal, Nov.-Dec. 2001)

Administration On Aging: Eldercare Locator (Administration on Aging, Nov. 2001)

Healing Arts Communications unveils new Alzheimer's Caregiver Training program (Home Care Companion)

Last Acts Electronic Newsletter Home Page (Last Acts)

University of Hawaii's Center on Aging: Faith-Based Training Program in End-of-Life Care

"Life Lessons" by Elisabeth Kübler Ross & David Kessler

"Caring for Patients at the End of Life: Facing an Uncertain Future Together" (by Quill) Reveiwed by L. J. Schneiderman

"By No Extraordinary Means: The Choice To Forgo Life-Sustaining Food and Water" by Joanne Lynn (Ed.)

Identifying End-of-Life Funding Sources By Last Acts

Beth Israel Medical Center -- Department of Pain Management and Palliative Care (Complete reference site for professional and family caregivers)

Medicaid and End of Life (2001 Urban Institute Report)

The Ins and Outs of "Incident-To" Reimbursement (American Academy of Family Physicians)

Bucking the System: A Massachusetts psychologist's legal challenge against Medicare's failure to reimburse makes progress (American Psychological Association Monitor)

How to Handle the HIPAA Hype (Psychiatric Practice and Managed Care)

Assuring Cultural Competence in Health Care: Recommendations for National Standards and an Outcomes-Focused Research Agenda (PHS Office of Minority Affairs)

Organizations
AAHPM Alabamian's for Better Care at Life's End

AAHPM American Academy of Hospice and Palliative Medicine

American College of Physicians American College of Physicians - American Society of Internal Medicine

Americans for Better Care of the Dying Americans for Better Care of the Dying

AMA American Medical Association

American Psychological Assoication American Psychological Association

ADEC Association for Death Education and Counseling

Bazelon Center for Mental Health Law Bazelon Center for Mental Health Law

Beth Israel Medical Center -- Department of Pain Management and Palliative Care (Complete reference site for professional and family caregivers)

Bazelon Center for Mental Health Law Finding Our Way: Living with Dying in America

Bazelon Center for Mental Health Law American Psychological Association, Division 20 (Adult Development and Aging)

GrowthhouseGrowthhouse


Growth House Search  

Hospice Links Hospice Hotlinks

Institute for Healthcare Improvement Institute for Healthcare Improvement

ILSDG Institute for Life-Span Development and Gerontology

Last Acts Last Acts

Nathan Cummings Foundation Nathan Cummings Foundation

Midwest Bioethics Center Midwest Bioethics Center

NBAC National Bioethics Advisory Commission

AAHPM National Hospice and Palliative Care Organization

AAHPM National Institutue of Nursing Research (NINR)

Partnership for Caring Partnership for Caring

Project on Death in America Project on Death in America

AAHPM Promoting Excellence in End-of-Life Care (Robert Wood Johnson Foundation)

SPSSI Society for the Psychological Study of Social Issues

VA-EPEC VA Faculty Leaders Project for Improved Care at the End of Life

WRGEC Western Reserve Geriatric Education Council



Working Group

Home Page    Research    Service    Education    Policy    Bios
  


Maintained by the Web Team
© 2002 by The Working Group
Last modified: 13-March-02