
E-Mail:
rdepom1@uakron.edu
Address Questions, Comments, or to receive a brochure please contact: williams.41@wright.edu
Address Questions or Comments to: jruma@hcno.org,nelamp@gte.net
Address Questions or Comments to: bogner.1@osu.edu, corrigan.1@osu.edu
Address Questions or Comments to:
audreytbicm@earthlink.net,dufore@csbmrdd.com
Miami Valley Hospital: HIRE Program: "Complete grant application for RSA Special Demonstrations Project."
Northwest Ohio Regional Trauma Registry: "Continuing to find other sources for patients."
Ohio Legal Rights Service: "We drafted five three-fold pamphlets on abbreviations, terms, public housing, and the planning process."
Ohio State University: "Rate of subject enrollment has increased."
June 2001
Miami Valley Hospital: HIRE Program: "We completed 2 more evaluations and are starting another student in clinic."
Northwest Ohio Regional Trauma Registry: "Continuing to find additional subjects."
Ohio Legal Rights Service: "We drafted formatting idea for the housing booklet."
Ohio State University: "Proceeding smoothly."
TBI Collaborative: County of Summit Board of Mental Retardation and Developmental Disabilities: "We have identified an additional housing management company."
Miami Valley Hospital: HIRE Program: "A paper proposal submitted to the National Institute on Family Violence was submitted, and will be presented in September, 2001."
Northwest Ohio Regional Trauma Registry: "We have found another way to get subjects."
Ohio Legal Rights Service: "Developed and edited a slide presentation."
TBI Collaborative: County of Summit Board of Mental Retardation and Developmental Disabilities: "We have placed two individuals this month in Sober surroundings group home."
Miami Valley Hospital: HIRE Program: "We have completed two more evaluations. Our two placements continue to be employed."
Northwest Ohio Regional Trauma Registry: "Soon we will have all four IRB's cleared and collecting subjects."
TBI Collaborative: County of Summit Board of Mental Retardation and Developmental Disabilities: "We have identified three subsidized housing facilities that can accept a person without an income, and have placed one individual who is in the above situation this month."
Miami Valley Hospital: HIRE Program: "We have at least 3 more evaluations coming our way but they have not been received yet. We also expect to recommend the treatment program for at least two more consumers and will hopefully admit them to program within the next two weeks."
Northwest Ohio Regional Trauma Registry: "There are three hospitals on line collecting subjects, with number four in the works."
Ohio Legal Rights Service: "OLRS held a preliminary discussion with Creative Housing, Inc. in an effort to establish a taping schedule for a housing video."
Ohio State University: "We've reached our 50th subject!"
TBI Collaborative:
County of Summit Board of Mental Retardation and Developmental Disabilities:
"With the assistance of Pastor Charlie Cooper at Edwin Shaw Hospital, we
have been able to
obtain
funding for housing."
Miami Valley Hospital: HIRE Program: "Both students previously placed are still employed."
Northwest Ohio Regional Trauma Registry: "We received approval from another large hospital to collect subjects."
Ohio Legal Rights Service: "OLRS sought and gained approval from the RSC to revise the Housing grant to include contracts with several housing providers and consultants."
Ohio State University: "Data compilation continues to progress."
TBI Collaborative: County of Summit Board of Mental Retardation and Developmental Disabilities: "The Summit County Tri-County Independent Living agency has been able to identify apartments that might be available, and with this grass roots effort, we have been able to obtain housing for three individuals who are ineligible for the Metropolitan Housing resources."
Miami Valley Hospital: HIRE Program: "The second job placement is going well."
Northwest Ohio Regional Trauma Registry: "We may have the opportunity to involve a fourth hospital in the study."
Ohio State University: "Considerable progress has been made with data compilation."
TBI Collaborative: County of Summit Board of Mental Retardation and Developmental Disabilities: "Housing for two individuals on case management caseload "Sober Surroundings" has proven to be an excellent environment for both individuals."
Comments:
Miami Valley Hospital: HIRE Program: "We have our second job placement this month, and another student is moving to job tryout."
Northwest Ohio Regional Trauma Registry: "Attending meetings and learning a great deal first hand."
Ohio State University: "Service provision is proceeding."
TBI Collaborative: County of Summit Board of Mental Retardation and Developmental Disabilities: "We obtained the pediatric follow-up data sheet from the Pediatric Brain Injury Program with the Medical center at the University of North Carolina."
Miami Valley Hospital: HIRE Program: "We have completed 2 evaluations and we have another referral in the mail. We have one successful placement and another student has a job interview scheduled."
Northwest Ohio Regional Trauma Registry: "Opportunity to work with others and, getting ready for analysis."
Ohio Legal Rights Service: "OLRS continues to examine how local, state, and federal housing plans are interconnected."
Ohio State University: "The six month follow-ups have successfully commenced."
TBI Collaborative:
County of Summit Board of Mental Retardation and Developmental Disabilities:
"Another client has obtained sober housing and that is going well."
OCTOBER 2000
Miami Valley Hospital: HIRE Program: "We received 3 additional referrals for evaluations and we have 2-3 more coming our way!"
Northwest Ohio Regional Trauma Registry: "The instruments are going to do a good job of testing a broad scope of information."
Ohio Legal Rights Service: "We are making progress in identifying federal and state housing resources."
Ohio State University: "Enrollment continue to be going well."
TBI Collaborative: County of Summit Board of Mental Retardation and Developmental Disabilities: "We identified 4 persons at Akron City Hospital to be involved with making referrals and who are excited to disseminate educational information."
Miami Valley Hospital: HIRE Program: "A poster was submitted and accepted by the Ohio Psychological Association Annual Convention. The poster describes the transitional youth program and highlights goals and processes involved."
Northwest Ohio Regional Trauma Registry: "The survey instruments are coming along very well."
Ohio Legal Rights Service: "We have begun to identify existing housing programs at the federal and state level."
Ohio State University: "Enrollment procedures are going well."
TBI Collaborative:
County of Summit Board of Mental Retardation and Developmental Disabilities:
"We
have received 5 new referrals this month for case management services.
We have also received feedback from consumers indicating great appreciation
for this much needed service!"
AUGUST 2000
Northwest Ohio Regional Trauma Registry: "We have found being able to connect with other projects and resources in the state to be very helpful."
Ohio State University: "New time schedules have been determined for follow-up appointments that readily coincide with physician appointments."
TBI Collaborative:
County of Summit Board of Mental Retardation and Developmental Disabilities:
"Two
target hospital have been established where resource materials can be distributed."
Miami Valley Hospital: HIRE Program: "A Transitional Youth Brochure has been designed explaining the program."
Northwest Ohio Regional Trauma Registry: "Ed Lamp, the Project Director, who is very well qualified is working independently to keep the project on track."
Ohio State University: "Enrollment and assessment procedures have been ironed out; staff have become familiar and Comfortable with the procedures."
TBI Collaborative:
County of Summit Board of Mental Retardation and Developmental Disabilities:
"TBI
Collaborative Network has obtained an outstanding Case Manager!"
July 2001
Year One
Year Two
Second Year's Projection
Total*
Total Referrals
Initiated
22
29
35
57
Evaluation 11 15 19 30
Treatment 3 11 11 14
Job Tryout 2 6 6 8
Placement 2 3 5 7
Job Coaching 2 3 5 7
Retention 2 2 5 7
*The above total column includes projections listed.
January 30, 2001
1) Status of program participants:
Total Referrals Initiated/Phone Calls
45
Total Referrals Initiated 2nd year of grant
25
Total Referrals Received for 2nd year of grant
11
Current Status of Referrals and Goal Expectations
Current In Process Year Totals Goal
Evaluations Completed
2
9
12
Clinic
3
5
8
Job Tryout
2
4
8
Placement
1
2
6
Job Coaching
1
2
6
Retention
1
1
6
· We have 2 evaluations we have recently completed and recommended the program. Due to current staffing availability and client numbers, we cannot start these two yet! We are working on this and hope to start them ASAP!!
Placement Status Update Report
Participant #1 Placed reached 30 day retention. Working 30 hours a week, $5.50/hour.
Participant #2 Placed /currently receiving job coaching and doing well. He is earning $6.50/hour working part-time (24 hours a week). He will be moved to full-time and $9.00/hour when he gets his diploma.
Transitional Youth Grant Quarterly Report
July, August, September 2000
HIRE
360 S. Main Street
Dayton, OH 45401
(937) 208-4473
November 14, 2000
Jacque Ryan, Program Administrator
Julie Williams, Coordinator
Status of Program Participants:
Current Qtr Total for year
Total for 3 years
· Completed Evaluations
3
3
13
· Work Skills Clinic
3
6
7
· Job Tryout
1
2
4
· Discontinued from program
1
1
1
· Job Placement Activity
1
3
5
· Placed in the Community
1
1
3
· Job Coaching
1
1
3
· Reached Retention
0
0
2
· Inquiries/Referrals received since beginning
of grant: 36
· Inquiries/Referrals received since beginning
of 2nd year: 13
· Outstanding verbal referrals at this
time: 4
· Non-TBI contacts/referrals: 8
Marketing Efforts:
· All BVR/BSVI offices have been met with
to review the grant.
· Meetings/Contacts/Visits: Springfield
Transition Meeting, Miamisburg High School, West Carrollton High School,
Centerville High School, Troy Schools, Greene County Schools & Preble
County Schools.
· Completed/distributed Transitional Youth
brochures
· Meetings/Contacts/Visits: Dettmer OP
Mental Health for Youth, Wesley Community Methodist Center, Preble County
Crisis Center, Ellis Institute, Crisis Center (Dayton)
· Presented at the Ohio Brain Injury Conference
and presented a poster at the Ohio Psychology Conference
Focus for next quarter:
· 2 successful job placements
· 1 transition to job tryout
· 4 more evaluations and admittance of
at least 2 more into program.
· Continuation of marketing efforts as
opportunities arise.
Northwest Ohio Regional Trauma Registry
Ed Lamp, Ph.D.
1. At this time we are collecting subjects from the three trauma hospitals.
The timing of these collections has been delayed due to IRB processes. With approval of the grant supervisor, the data collection and documentation portion of the grant will be extended for six months. This will not increase the cost of completing the grant, but will increase the possible number of subjects in the study.
2. The number of subjects seems to be less than projected and therefore we are researching possible reasons for the lower number.
At this time the trauma registry has been studied looking at the details of the severity of injury. There seems to be a large number of people who are entered into the trauma registry (trauma source with 48 or more hours in the hospital) when the reason for the 48 hour plus stay was due to injuries other than the ICD9- coded traumatic brain injury.
3. Currently one the rehabilitation hospitals in Northwest Ohio is applying to their IRB for approval to collect subjects at their site for our study.
This method was added when we found that some of the people were being discharged to rehabilitation before they were able to consent and/or had no one to consent for them.
4. Arrangements have been made with the Brain Injury Association of Ohio to survey subjects at their annual meeting in early September.
This will give us information from people who are one plus years post injury, comparable to the 1992 study. In addition, because we are obtaining data from family members of survivors not collected in the previous study, we will gain a long term view that has not been documented previously in Ohio.
Ed Lamp, Ph.D.
Since the beginning of the grant in the April until the end of October a number of activities and projects have been accomplished. Some of these include reviewing the traumatic brain injury (TBI) literature, making professional contacts, and preparing survey materials.
The grant is divided into two main areas.
One area involves surveying the survivors of a traumatic brain injury and
their families to find out their needs and health conditions. The
other area involves studying the Northwest Ohio Trauma Registry, which
will be used as one form of validity in the above TBI study. Both parts
of the grant are moving along on schedule as described in the original
grant, with some
updates.
The requirement that all hospitals maintain a trauma registry and the creation of the Northwest Ohio Trauma Registry are relatively new. A trauma registry specialist has been assembling the 1999 data and checking it for accuracy. Many of the hospitals in the registry are new at this process and some of the hospitals have been having computer difficulties, data in an easy to use form has been a slow process. The output of the 1999 data seems very useful in finding out what is taking place in Northwest Ohio. The data seems to meet our needs for this TBI project. The data for year 2000 is coming in well and many of the small problems with the system are being worked out. The information in the 2000 data set will be used for comparison data with both state and national trauma figures. These comparisons are important because if our trauma statistics match state data, then information from the surveys will apply to the other parts of the state.
A large amount of time has been spent reviewing the literature dealing with traumatic brain injury and what has been done in the past to understand needs. This search has helped modify the 1992 needs assessment survey and find a number of additional survey instruments. The combination of improvements to the old study and additions of new instruments will improve the final recommendations of this study. The combined survey package is currently under review by St. Vincent's, in Toledo, Ohio, institutional review board. As soon as the board approves, patients can be entered into the convenience sample to be surveyed in three months and then again in six months.
Time in the previous months has been spent
making contacts with professionals in the area, attending support groups,
and planning future programs. Kathleen Weber of the Ohio Brain Injury Association
has helped with both information and as a source to a support group.
Other contacts have been made with St. Francis Rehabilitation Center and
the rehabilitation team at the Medical College of Ohio. A power point presentation
was prepared and presented at the Ohio Brain Injury State Conference, as
well as attendance at both days of the conference. A
modification of that presentation was presented
at the Brain Injury Advisory Committee Meeting. At this meeting a
contact was made with a person from the State Department of Education.
The hope is that this contact will help find a grant to do TBI prevention
projects and more research in Northwest Ohio.
During the last quarter, OLRS spent a significant amount of time classifying the information and data obtained throughout the grant period in anticipation of the first advisory committee meeting. Since June 12th, OLRS has been refining the information and distilling information which might be useful to families and consumers. OLRS staff are now working toward the completion of grant product(s). A final report will be developed that identifies the major obstacles to public housing and frames some of the policy issues for people with disabilities. The report also will include relevant housing information for families, consumers and advocates. OLRS has met with representatives of state printing to discuss layout possibilities. Prior to completion, OLRS will convene the advisory committee at least one more time for their input.
Accessible Housing Video
As part of this grant, OLRS contracted with Creative Housing, Inc. to develop a cross-disability accessible housing video. Shooting for the video has been completed. Final editing will be done the week of August 20th. The video should be completed by the first week of September. Several family members of TBI consumers will be included in the video as well as a TBI consumer who is in an accessible home operated by Creative Housing, Inc.
OLRS Activities during the last quarter:
OLRS continues to research housing programs in Ohio. To this end, OLRS, in the last quarter, has:
During this quarter, OLRS identified several existing housing initiatives and is interested in collaborating with these organizations. This collaboration will increase the awareness of the housing needs of individuals with TBI. These "partnering" efforts, however, will require a change in grant funds. OLRS is in the process of submitting a project change request.
The Housing Crisis: A TBI Perspective
Quarterly Report: November 15,
2000
Ohio Legal Rights Service
Ohio Legal Rights Service (OLRS) has spent the majority of the first period of this grant identifying the housing problems for individuals with TBI and the various public housing resources that come to Ohio from the federal government. A summary of the details of this work was presented at OBIA’s Annual Conference on September 29, 2000. (This was a session apart from the HIAC grantee session). A copy of the slide presentation used at that session is being sent to you by mail.
OLRS has substantially completed the first task listed in our proposal which was to identify the Housing problem for individuals with TBI. We think we have framed the issues in such a way so that families and policy makers will grasp the magnitude of the problem. These significant and overriding housing issues are problems for individuals with TBI and the entire disability community. The primary issues based on our research are:
F affordability (For example, a minimum wage earner in Ohio must work 63 hours a week to afford a one bedroom apartment: An individual who depends on SSI in Ohio can afford monthly rent of no more than $114).
F availability (including a limited number of housing units; a decreasing number of public housing units; public funding for housing has decreased; and the system that controls the use of public housing funds is not addressing or prioritizing the needs of people with disabilities.
F accessibility (a more significant portion of public housing must be accessible for those with mobility impairments)
F advocacy - It is clear from our research that not only are public housing officials not prioritizing the housing needs of people with disabilities, but people with disabilities, their families and advocates are often not advocating and informing these officials.
We believe using the 4-A's has great potential,
in terms of understanding the issues and in terms of marketing. We
anticipate that this format will likely make its way into the Housing Guide.
OLRS has also been identifying existing housing programs at both the federal and state level. Much of this early work has centered on understanding how these programs are governed by local and state plans that must be completed during the year 2000. There are two (2) required plans, which are interconnected. These two plans are the Consolidated Plan and the Public Housing Agency (PHA) Plan. Information was shared with those attending the OBIA conference. However, it is clear that a long term advocacy effort that would establish collaborations with other disability groups and ongoing efforts to educate housing officials on the housing needs of people with disabilities is needed.
While the major programs have been identified our next task is to study those programs to better understand the parameters of the programs (who is eligible, etc) and how they are being used in Ohio. A far more comprehensive study of these programs is necessary so that information can be included in a Housing Guide that provides information in a clear, and concise manner. Several other states will also be contacted regarding their efforts to address the housing crisis.
Project Goal: Through a randomized clinical trial, the proposed project will evaluate the effectiveness of a resource and service coordination model.
A. Start up
Start-up activities have been completed.
B. Project implementation
1. Conduct subject enrollment, baseline assessments, and random assignments. As of April 30, 51 subjects were enrolled, assessed, and assigned. The original enrollment goal has been reached, however we will continue to enroll subjects to obtain a larger sample in order to maximize power for statistical analysis, as well as for reasons noted below.
2. Provide resource and service coordination.
Resource and service coordination has
been provided to those subjects assigned to this
condition who have attended their appointment or, if not, have responded
to telephone contact. Thus far, 10/23 of the individuals assigned to this
condition chose not to attend their appointment with the resource and service
coordinator. In 2 of these cases, information and support has been
provided by phone. The remaining 8 individuals have not responded
to telephone contact.
3. Conduct outcome assessments. The outcome assessments continue to be conducted. Eleven of 46 subjects could not be reached for the three month follow-up and 10/36 could not be reached for the six month follow-up. We have sought to minimize the lost-to-follow-up rate by obtaining multiple phone numbers and addresses (primary residence, next of kin, etc.). We will be seeking to enroll a larger sample in order to compensate for subjects who were not available for either the 3 month or 6 month follow-ups.
4. Compile data. Data compilation continues.
5. Analyze data. This activity will
begin during the last quarter of the grant.
C. Project completion and evaluation
1. Interpret and disseminate findings. These activities will begin during the last quarter of the grant. A description of the project will be presented at the Brain Injury Association meeting in July, 2001.
2. Conduct program evaluation. This quarterly report represents the fourth evaluation of progress toward goals.
Team Brain Injury: A Randomized
Clinical Trial of a Resource and Service Coordination Model
Quarterly Report
Quarter 3, ending January 31,
2001
Project Goal: Through a randomized
clinical trial, the proposed project will evaluate the effectiveness of
a resource and service coordination model.
A. Start up
Start-up activities have been completed.
B. Project implementation
1. Conduct subject enrollment, baseline assessments, and random assignments. As of January 31, 44 subjects were enrolled, assessed, and assigned.
2. Provide resource and service coordination.
Resource and service coordination has
been provided to those subjects assigned to this
condition who have attended their appointment or, if not, have responded
to telephone contact. Thus far, 10/22 of the individuals assigned to this
condition chose not to attend their appointment with the resource and service
coordinator. In 2 of these cases, information and support has been
provided by phone. The remaining 8 individuals have not responded
to telephone contact. The subjects with whom we have had no
contact will be replaced with new subjects.
3. Conduct outcome assessments. The outcome assessments continue to be conducted. Ten of 36 subjects could not be reached for the three month follow-up and 3/14 could not be reached for the six month follow-up. We have sought to minimize the lost-to-follow-up rate by obtaining multiple phone numbers and addresses (primary residence, next of kin, etc.). We will be seeking to enroll a larger sample in order to compensate for subjects who were not available for either the 3 month or 6 month follow-ups.
4. Compile data. Considerable progress has been made with data compilation this quarter. While still slightly behind schedule, the compilation process is proceeding at a steady pace.
5. Analyze data. This activity will
begin during the last quarter of the grant.
C. Project completion and evaluation
1. Interpret and disseminate findings. These activities will begin during the last quarter of the grant. A proposed presentation has been submitted for the annual conference of the Brain Injury Association.
2. Conduct program evaluation. This quarterly report represents the third evaluation of progress toward goals.
Team Brain Injury: A Randomized
Clinical Trial of a Resource and Service Coordination Model
Quarterly Report
Quarter 2, ending October 31,
2001
Project Goal: Through a randomized clinical trial, the proposed project will evaluate the effectiveness of a resource and service coordination model.
A. Start up
Start-up activities have been completed. Due to
the extended illness of one staff member, an additional individual was
hired at no additional cost to the project. In addition, staff time previously
allotted to other projects was re-assigned to this project, again at no
additional cost to the project (using funds not paid out to the ill staff
member), to assist with completing project activities.
B. Project implementation
1. Begin subject enrollment, baseline assessments, and random assignments. Subject enrollment, assessments, and assignments began in May, 2000. As of October 31, 33 subjects were enrolled.
2. Provide resource and service coordination. Resource and service coordination has been provided to those subjects assigned to this condition. Thus far, 6/16 of the individuals assigned to this condition chose not to attend their appointment with the resource and service coordinator. In 2 of these cases, information and support has been provided by phone and future clinical follow-up will be conducted. The remaining 4 individuals have not responded to telephone contact.
3. Conduct outcome assessments. The outcome assessments began in August.
4. Compile data. The data compilation process has begun, but progress has been slower than anticipated due to the illness of a staff member. It is expected that progress will improve in the coming quarter.
5. Analyze data. This activity will begin during
the last quarter of the grant.
C. Project completion and evaluation
1. Interpret and disseminate findings. These activities will begin during the last quarter of the grant.
2. Conduct program evaluation. This quarterly
report represents the second evaluation of progress toward goals.
Project Goal: Through a randomized, controlled clinical trial, the proposed project will evaluate the effectiveness of a resource and service coordination model.
A. Start up
1. Recruit and train resource and service coordinator. The new resource and service coordinator was hired in June, 2000. The hiring process was more protracted than expected due to delays in finalizing the grant contract as well as difficulties finding a qualified individual. Basic training was conducted in June, however training is ongoing.
2. Recruit and train research nurse. This individual was hired and trained in May, 2000.
3. Assign Biometric staff member as data
manager. Biometrics staff have been assigned to the project.
B. Project implementation
1. Begin subject enrollment, baseline assessments, and random assignments. Subject enrollment, assessments, and assignments began in May, 2000. As of June 30, 8 subjects were enrolled.
2. Provide resource and service coordination. Resource and service coordination has been provided to those subjects assigned to this condition. Thus far, 50% of the individuals assigned to this condition chose not to attend their appointment with the resource and service coordinator. In these cases, information and support has been provided by phone and future clinical follow-up will be conducted.
3. Conduct outcome assessments. The outcome assessments will begin in August.
4. Compile data. The data compilation process has begun.
5. Analyze data. This activity will
begin during the last quarter of the grant.
C. Project completion and evaluation
1. Interpret and disseminate findings. These activities will begin during the last quarter of the grant.
2. Conduct program evaluation. This
quarterly report represents the first evaluation of progress toward goals.
TBI Collaborative: County of Summit Board of Mental Retardation and Developmental Disabilities
Accomplishments:
Accomplishments:
Accomplishments:
Accomplishments:
Accomplishments:
Accomplishments:
Accomplishments:
Accomplishments:
Web site maintained by Sara Crowe, The University of Akron
smc11@uakron.edu
Updated September 19, 2001